Date: October 22, 2014

To establish the “Puerto Rico Registration and Vital Statistics Act”, for the purpose of establishing the Puerto Rico Vital Statistics Registry Office (OREV), which shall exercise full fiscal and administrative autonomy; establish its functions and responsibilities; provide for a minimum amount of local records; create the management position of State Registrar; establish minimum requirements, the term, functions and powers of the position; establish transitional clauses for the transfer and transfer of human capital, movable and immovable property; implement a security method to the Vital Statistics System for purposes of public health, national security, among others; establish procedures for handling legal documents provided for by law, such as certificates and reports of vital events; impose controls to prepare, maintain and disclose the content of vital records and reports in their custody; repeal Act No. 24 of April 22, 1931, according to...

To amend Articles 3, 4, 5, 6, 8, 11, 13 and 21, add a new Article 22 and renumber Article 22 as Article 23 of Law 209-2003, as amended, known as the “Puerto Rico Institute of Statistics Act”, for the purpose of making technical amendments; providing that the Institute of Statistics of Puerto Rico may request, accept and receive donations; establish that the sums collected by this concept may be used to defray the operating and operating expenses of the Institute and the statistical activities that the Institute determines; provide for the power of the Board of Directors of the Institute to approve the acquisition of equipment, materials and services whose value exceeds the amount of one hundred thousand ($100,000) dollars; provide that the Board of Directors shall have as part of its duties and powers the authority to adopt the ethical standards applicable to any person who works in the statistical units of government agencies or who advises, intervenes or collaborates with the Statistical Production Service of the Commonwealth of Puerto Rico; constitute a work unit and allocate the necessary resources to, at the request of any person, private entity or government agency, or the Judicial Branch, to provide compensated services; clarify the obligations of government agencies regarding the sending of statistical information to the Institute; provide that the Governor will include in the model budget the calculations for the current expenses of that Institute, without reviewing them, to guarantee its fiscal stability; create the Program of Academies and Workshops of the Institute of Statistics of Puerto Rico; establish a certification system for continuing education as a requirement for occupying and remaining in a position or position, or offering outside consulting or advice; ordering the Institute to prepare the necessary forms for notification by government bodies, and for other related purposes.

To establish the Public Policy of the Government of Puerto Rico regarding Albinism and Hermansky‐Pudlak Syndrome, providing that direct access will be established to providers and medical specialists, as well as those medications, treatments, therapies and tests scientifically validated as effective and recommended to diagnose and treat the condition, without the need for referral, authorization or pre-authorization of the plan; order the Department of Health to create and exercise public policy, establishing a Registry of people suffering from disease for the purpose of keeping official statistics and creating a profile of cases that exist in Puerto Rico; and for other related purposes.