P. of S. 1127

Memorials
IEPR
17 December 2025

To establish the Public Policy of the Government of Puerto Rico regarding Albinism and Hermansky‐Pudlak Syndrome, providing that direct access will be established to providers and medical specialists, as well as those medications, treatments, therapies and tests scientifically validated as effective and recommended to diagnose and treat the condition, without the need for referral, authorization or pre-authorization of the plan; order the Department of Health to create and exercise public policy, establishing a Registry of people suffering from disease for the purpose of keeping official statistics and creating a profile of cases that exist in Puerto Rico; and for other related purposes.

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