Results of the Registry and Study of Needs of the Deaf Community in Puerto Rico

Announcements
IEPR
31 August 2026

A lack of interpreters and trained staff are among the communication barriers facing the Deaf community

69% of those who evaluated their communication experience in healthcare services rated it as fair or poor.

The Puerto Rico Institute of Statistics presented the results of the Registry and Study of Needs of the Deaf Community in Puerto Rico for the period of January 13 to July 24, 2026. The results underscore the importance of having sign language interpreters and trained staff to facilitate this population's access to essential services. According to the report, 89% of those who responded to the needs questionnaire indicated they had visited a hospital, clinic, or doctor's office within the last year. Among the issues noted when evaluating communication in these settings were the lack of interpreters and the absence of trained staff.

Likewise, when asked what they primarily need when attending an appointment at a government office or healthcare service, respondents mentioned the need for trained staff, the availability of in-person interpreters, and the provision of forms accessible to the Deaf.

“These findings allow us to identify concrete needs to continue strengthening the accessibility of services received by the Deaf or hard-of-hearing community. Having trained staff, sign language interpreters, and accessible communication tools can make a significant difference in people's experiences and their ability to receive the guidance and services they need,” said the Institute of Statistics' executive director, Dr. Orville M. Disdier.

Key findings include:

• 89% indicated they had visited a hospital, health clinic, or doctor's office within the last year.

• 71% reported using hearing aids or a cochlear implant.

• 69% of those who evaluated their communication experience in healthcare services rated it as fair or poor.

• 67% of those who responded to the Registry indicated they have been deaf since birth.

• 62% indicated they are not currently employed.

• 61% noted they do not have access to video relay services.

• Puerto Rican Sign Language and American Sign Language accounted for 398 mentions among the forms of communication used by those enrolled in the Registry.

The results are part of the official report prepared by the Institute in compliance with Executive Order OE-2026-002, issued by Governor Jenniffer González Colón. The document was submitted to the governor on August 12, 2026, as requested and established in the executive order.

The executive order tasked the Institute, in collaboration with various government agencies and entities, with making a formal effort to collect information on the Deaf community in Puerto Rico, including its characteristics, particularities, and forms of communication. As part of this mandate, the Institute developed two components: the Registry of Deaf Persons in Puerto Rico and the Needs Questionnaire for the Deaf Community. This builds upon the effort previously undertaken by the Institute, which culminated in the First Study of Needs of the Deaf Community in Puerto Rico, published on July 21, 2022, and available on the Institute's website.

During the analyzed period, the Registry received 803 entries, 410 of which met the established inclusion criteria. For its part, the Needs Questionnaire reached 103 processed responses.

“Understanding how this population communicates and what their needs are is fundamental to guiding decision-making and developing initiatives that respond to their reality. This effort provides us with a foundation to continue expanding the available information and promoting increasingly accessible services,” added Disdier.

“These results describe the characteristics and experiences of the people who participated voluntarily. While they should not yet be used to make estimates for the entire Deaf community in Puerto Rico or for comparisons between municipalities, they do allow us to begin formulating public policy. In this sense, we recommend expanding the project's scope, strengthening the collaboration of the agencies involved, developing a municipal outreach plan, and continuing to collect and expand the data,” explained Joselyn Santiago, one of the study's lead authors.

Although the executive order has expired, the Institute will continue to expand and update the Registry and the Needs Questionnaire until at least the end of December 2026. This will allow for the inclusion of more participants, increased geographic representation, and the strengthening of available information to continue supporting the development of public policies and services aimed at the Deaf community.

“This effort is only the beginning, as we will continue to strengthen and expand both the registry and the needs study. At the Institute, we will continue to seek the necessary resources to allow us to reach more people within the Deaf communities who wish and need to be heard and represented,” said Dr. Disdier.

The full report is available through the Puerto Rico Institute of Statistics portal at: Registry and Study of Needs of the Deaf Community in Puerto Rico.

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Population reduction continues in Puerto Rico's municipalities

Population reduction continues in Puerto Rico's municipalities

This is indicated by the estimates for the month of July 2022 of the U.S. Census Bureau

San Juan, PR, March 30, 2023 — The U.S. Census Bureau today released the most recent Annual Population Estimates data for municipalities in Puerto Rico, as well as for counties in the United States. These statistics refer to July 1, 2022 and include estimates of the total population for each municipality and the population change in the current decade. On behalf of the U.S. Census Bureau's Network of Data and Census Information Centers (SDC-PR) in Puerto Rico, the Puerto Rico Statistics Institute (Institute) reported several findings from the new publication of population estimates for the year 2022:

  1. Compared to the 2020 Decennial Census with reference to April 1, 2020, compared to the most recent year available, July 1, 2022, estimates indicate that:
    • Changes in the population of residents in municipalities ranged from 0.8% to -7.2%.
    • In 99% of the municipalities, a population decrease was estimated. Only for the municipality of Rincón, a slight increase (0.8%) was estimated.
    • Some 15 municipalities reflected an estimated reduction of more than three percent (3%) in the comparative period.
    • The total population of all of Puerto Rico is estimated to have fallen by two percent (2%), translating to nearly 64,000 fewer residents than in April 2020.
  1. In relation to the geographical aspect between municipalities, with regard to the change in the total population estimated up to the year 2022, the interactive map provides the geographical distribution.

In this one you can identify:

    • The five municipalities with the highest percentage of population decline were Guánica (-7.2%), Loíza (-4.4%), Guayanilla (-4.0%), Ponce (-3.9%) and Maricao (-3.8%).
      • Four of the five municipalities are located in the south and west of Puerto Rico, and Loíza, on the other hand, in the northeast.
    • The five municipalities with the lowest percentage of population decline were Barranquitas (-0.1%), Naranjito (-0.1%), Aibonito (-0.3%), Isabela (-0.4%) and Moca (-0.5%).
      • The first three municipalities are located in the central area (Barranquitas, Naranjito and Aibonito) and the last two (Isabela and Moca) in the western part of Puerto Rico.

“The pattern of population estimates continues to show a tendency to decrease, a trait of which, at the level of Puerto Rico, we are already approaching nearly two decades (since 2005) of being an increasingly smaller resident population but with a different demographic composition,” said Alberto L. Velázquez-Estrada, Senior Manager of Statistical Projects at the Institute. As an interactive summary, the Institute published a visualization that allows us to see the new series of estimates at the municipal level, facilitating geographical comparison within Puerto Rico. This visualization can be accessed at: https://censo.estadisticas.pr/node/517.

The tables with the annual population estimates for Puerto Rico and its municipalities can be accessed at: https://censo.estadisticas.pr/EstimadosPoblacionales, as well as in the data dissemination tool of the U.S. Census Bureau: data.census.gov. In addition, as the leading entity of the State Data Center of Puerto Rico, the Institute manages the SDC portal, which contains the main statistical reports and publications of the U.S. Census Bureau on Puerto Rico, specifically those that are most in demand, such as annual population estimates; the Puerto Rico Community Survey (Puerto Rico Community Survey) and official statistics on Puerto Rico's decennial population and housing censuses, among others. The Puerto Rico SDC portal can be accessed through: censo.estadisticas.pr.

The Puerto Rico Statistics Institute is an autonomous governmental entity responsible for coordinating the Government's statistical production service to ensure that the data collection and statistics systems, on which public policies are based, are complete, reliable, and have quick and universal access.

For more information you can visit the website: www.estadisticas.pr.gov or write to preguntas@estadisticas.pr. They can also follow social networks through Facebook (@estadisticas .pr), Twitter (@EstadisticasPR), LinkedIn (Institute of Statistics of Puerto Rico) and Instagram (@institutodeestadisticas) accounts.

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American Statistical Association asks Ricardo Rosselló not to dismantle the Puerto Rico Statistics Institute

AMERICAN STATISTICAL ASSOCIATION REQUIRES ROSSELLÓ NOT TO DISMANTLE PUERTO RICO'S STATISTICS INSTITUTE

The executive director attacked the measure and invited the Government to take statistics seriously at this time of fiscal crisis

San Juan, PR, January 25, 2018 — The American Statistical Association, known as the American Statistical Association (ASA) today released a cyber petition entitled Clear Accounts: Let's Preserve the Autonomy and Impartiality of the Puerto Rico Statistics Institute in which he calls on both Governor Ricardo Rosselló and members of the Legislature to desist from transferring the functions of the Puerto Rico Statistics Institute (IEPR) to the Puerto Rico Department of Economic Development and Trade in order to eventually outsource all the statistical functions of the Government of Puerto Rico.

The ASA request makes specific reference to Reorganization Plan No. 1 And to Senate Bill 809, which was published yesterday and signed by five scientists from prestigious entities such as Harvard T.H. Chan School of Public Health and Yale University.

In addition, he emphasizes that this measure “would dismantle the IEPR and its autonomy, and would jeopardize the transparent and impartial statistical analyses that are critical to the functioning of Puerto Rico and to decision-making in all sectors of society, public and private.”

To this end, the executive director of the Puerto Rico Institute of Statistics, Dr. Mario Marazzi-Santiago, insisted that everywhere in the world there is a recognition of the need for official statistics to be prepared by independent governmental entities so that they can carry out their functions in a manner totally disconnected from political influences.

The Government of Puerto Rico has a long history of producing, disseminating and presenting rigged, outdated, misinterpreted, and incomplete statistics, and then access to sources of information is not provided so that the information can be verified, either by the citizen or by a congressman. The reality is that statistics are a serious issue and it is time for our Government to take them seriously, particularly if it wants to address its own fiscal problem.

Marazzi Santiago assured that there is no way that the proposed reorganization of the Institute of Statistics, as a program within the Department of Economic Development and Trade or outsourced by it, will solve the serious problem of reliability and credibility that the Government of Puerto Rico has with its statistics.

“We appreciate the efforts of the American Statistical Association (ASA) to create a vehicle that allows data users to express themselves publicly about the proposed reorganization,” said Dr. Marazzi-Santiago.

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The Puerto Rico Statistics Institute is an autonomous governmental entity responsible for coordinating the Government's statistical production service to ensure that the data collection and statistics systems, on which public policies are based, are complete, reliable, and have quick and universal access. The Institute has in its inventory, accessible through www.estadisticas.pr, more than 300 statistical products. In addition, it is a guardian and provides access to over 100 data sets or “data sets” through www.data.pr.gov and to over 40 tables and more than 6 thousand indicators through: www.indicadores.pr.

For more information you can visit our website: www.estadisticas.pr. In addition, you can follow us on social networks through Facebook (estadisticas.pr), Twitter (@EstadisticasPR) and LinkedIn (Institute of Statistics of Puerto Rico) accounts.

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They reveal an increasing trend in the incidence of Type 1 Diabetes in the pediatric population in Puerto Rico

They reveal an increasing trend in the incidence of Type 1 Diabetes in the

pediatric population in Puerto Rico

At the launch of the first Pediatric Type 1 Diabetes Platform in Puerto Rico

The incidence rate of Type 1 Diabetes in the pediatric population (new cases per 100,000 people between 0 and 18 years of age) shows a tendency to increase over the years, with 2009 being the year with the lowest rate (20.5), and 2021 the year with the highest rate (38.4). Although there are variations, on average, the incidence rate shows an increasing trend of 1% per year. In the most recent available year, 2022, the incidence rate was 34.2 new cases per 100,000 people between 0 and 18 years old. These data were revealed during the presentation of the first Pediatric Type 1 Diabetes Platform in Puerto Rico, developed by the Statistics Institute of Puerto Rico in partnership with the Pediatric Diabetes Foundation. This platform provides essential statistical data for understanding and addressing Type 1 Diabetes in Puerto Rico and is available at: https://estadisticas.pr/en/diabetes-tipo-1.

“These data are essential to be able to establish public policies for management, allocation of funds and resources, for researchers, doctors and for the families of patients living with diabetes. We needed an entity such as the Puerto Rico Statistics Institute with the expertise and willingness to help us with the statistical process, which resulted in an important alliance of will between the Foundation and the Institute. Today we can present the result of the collaboration between the Foundation and the Institute,” said Bernardo Maldonado, president of the Board of Directors of the Puerto Rico Pediatric Diabetes Foundation.

According to the executive director of the Institute of Statistics, Dr. Orville M. Disdier, this platform represents an essential advance in the understanding and management of Type 1 Diabetes in the pediatric population. “These findings, presented for the first time on an interactive platform, provide a detailed view of the situation of Type 1 Pediatric Diabetes in Puerto Rico, which is essential for guiding public health policies and resource allocation,” said Dr. Disdier.

The findings detailed on the platform reveal significant data for the period from 2009 to 2022. Among these, the following stand out:

  • Between 2009 and 2022, a total of 2,850 people between 0 and 18 years of age were diagnosed with Type 1 Diabetes for the first time. On average, 204 cases of Type 1 Diabetes are diagnosed annually in people 18 years of age or younger.
  • Most of the cases (67%) diagnosed with Type 1 Diabetes for the first time were between 5 and 14 years old. The average age of these cases was approximately 10 years.
  • Overall, 53% of the cases were male and the remaining 47% were female.

In addition, Mariana Benítez Hilera, executive director of the Pediatric Diabetes Foundation, emphasized the Foundation's work in collecting unique data since 2008. This is thanks to a collaborative alliance with the hospitals where these patients are diagnosed and pediatric endocrinologists. “Once a child is diagnosed with diabetes, the first help they receive at the hospital is from our Foundation, which in turn helps us to have contact with their family right from the start and help them throughout the education process,” said Benítez Hilera.

Dr. Marina Ruiz, a pediatric endocrinologist, emphasized that Type 1 Diabetes is the type of diabetes that most affects the pediatric population. “It's an autoimmune condition that has no cure and can't be prevented. The condition requires a multidisciplinary team, such as the one found at the Pediatric Diabetes Foundation, to achieve successful management. This is the first time that statistics on diabetes in children aged 0 to 18 have been generated in Puerto Rico, which will help position our island on the world map with validated and reliable data. This will lead to the development of clinical studies in the near future to continue expanding our knowledge of the condition. In addition, it helps to carry the message to communities so that they have symptoms present and thus avoid acute and/or chronic complications.” said Ruiz.

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