They reveal an increasing trend in the incidence of Type 1 Diabetes in the pediatric population in Puerto Rico

Announcements
IEPR
19 December 2025

They reveal an increasing trend in the incidence of Type 1 Diabetes in the

pediatric population in Puerto Rico

At the launch of the first Pediatric Type 1 Diabetes Platform in Puerto Rico

The incidence rate of Type 1 Diabetes in the pediatric population (new cases per 100,000 people between 0 and 18 years of age) shows a tendency to increase over the years, with 2009 being the year with the lowest rate (20.5), and 2021 the year with the highest rate (38.4). Although there are variations, on average, the incidence rate shows an increasing trend of 1% per year. In the most recent available year, 2022, the incidence rate was 34.2 new cases per 100,000 people between 0 and 18 years old. These data were revealed during the presentation of the first Pediatric Type 1 Diabetes Platform in Puerto Rico, developed by the Statistics Institute of Puerto Rico in partnership with the Pediatric Diabetes Foundation. This platform provides essential statistical data for understanding and addressing Type 1 Diabetes in Puerto Rico and is available at: https://estadisticas.pr/en/diabetes-tipo-1.

“These data are essential to be able to establish public policies for management, allocation of funds and resources, for researchers, doctors and for the families of patients living with diabetes. We needed an entity such as the Puerto Rico Statistics Institute with the expertise and willingness to help us with the statistical process, which resulted in an important alliance of will between the Foundation and the Institute. Today we can present the result of the collaboration between the Foundation and the Institute,” said Bernardo Maldonado, president of the Board of Directors of the Puerto Rico Pediatric Diabetes Foundation.

According to the executive director of the Institute of Statistics, Dr. Orville M. Disdier, this platform represents an essential advance in the understanding and management of Type 1 Diabetes in the pediatric population. “These findings, presented for the first time on an interactive platform, provide a detailed view of the situation of Type 1 Pediatric Diabetes in Puerto Rico, which is essential for guiding public health policies and resource allocation,” said Dr. Disdier.

The findings detailed on the platform reveal significant data for the period from 2009 to 2022. Among these, the following stand out:

  • Between 2009 and 2022, a total of 2,850 people between 0 and 18 years of age were diagnosed with Type 1 Diabetes for the first time. On average, 204 cases of Type 1 Diabetes are diagnosed annually in people 18 years of age or younger.
  • Most of the cases (67%) diagnosed with Type 1 Diabetes for the first time were between 5 and 14 years old. The average age of these cases was approximately 10 years.
  • Overall, 53% of the cases were male and the remaining 47% were female.

In addition, Mariana Benítez Hilera, executive director of the Pediatric Diabetes Foundation, emphasized the Foundation's work in collecting unique data since 2008. This is thanks to a collaborative alliance with the hospitals where these patients are diagnosed and pediatric endocrinologists. “Once a child is diagnosed with diabetes, the first help they receive at the hospital is from our Foundation, which in turn helps us to have contact with their family right from the start and help them throughout the education process,” said Benítez Hilera.

Dr. Marina Ruiz, a pediatric endocrinologist, emphasized that Type 1 Diabetes is the type of diabetes that most affects the pediatric population. “It's an autoimmune condition that has no cure and can't be prevented. The condition requires a multidisciplinary team, such as the one found at the Pediatric Diabetes Foundation, to achieve successful management. This is the first time that statistics on diabetes in children aged 0 to 18 have been generated in Puerto Rico, which will help position our island on the world map with validated and reliable data. This will lead to the development of clinical studies in the near future to continue expanding our knowledge of the condition. In addition, it helps to carry the message to communities so that they have symptoms present and thus avoid acute and/or chronic complications.” said Ruiz.

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Statistics Institute releases first results on the Study of the Needs of the Deaf Community in Puerto Rico

PRESS RELEASE

Statistics Institute releases first results on the Study of the Needs of the Deaf Community in Puerto Rico

84% of totally deaf people surveyed who needed public safety services and 75% of those who needed services in government agencies faced barriers

July 21, 2022: The executive director of the Puerto Rico Statistics Institute (Institute), Dr. Orville M. Disdier, presented the first results of the Study of the Needs of the Deaf Community in Puerto Rico, through an interactive digital report. This new product, called “Study of the Needs of the Deaf Community: Interactive Report”, presents the first results of the Population Survey that the Institute conducted, both to deaf and partially deaf people, and to the general public. In addition, the interactive report presents the results of focus group interviews with teachers of students with hearing difficulties. The platform presents, for both deaf and partially deaf people, data and statistics on socio-demographic aspects, on the difficulties presented when requesting services, both governmental and non-governmental, on the communication methods used by this community and on the difficulties in accessing information offered by various means of communication, among other findings.

“The data and statistics presented in this interactive report serve as an empirical basis to justify various initiatives and the development of new public policies that promote quality services and better integration of deaf people into the rest of society, while promoting equity and social justice,” said Dr. Disdier.

Some of the most relevant results of the Deaf Community Needs Study:

  • 9% of all respondents indicated that they were completely deaf.
  • 14% of all respondents indicated that they are partially deaf.
  • 62% of the totally deaf people who participated in the survey were deaf at birth, while the remaining 38% became deaf sometime after their birth.
  • 66% of the partially deaf who participated in the survey have a level of severe or profound deafness.
  • 86% of the totally deaf people surveyed said they often feel discriminated against (41% very often and 45% sometimes). On the other hand, 68% of the partially deaf people surveyed said they often feel discriminated against (20% very often and 48% sometimes).
  • 84% of the totally deaf people surveyed, who needed public safety services, faced barriers.
  • 75% of the totally deaf people surveyed, who needed services from government agencies, faced barriers.
  • On the other hand, 53% of the partially deaf people surveyed, who needed services from government agencies, faced barriers.
  • Other places where the totally deaf people surveyed mentioned that they have faced difficulty receiving services, integrating or participating, are:
    • Hospitals (55%)
    • Medical offices (46%)
    • Restaurants (42%)
    • Banks or cooperatives (42%)
    • Place of employment (34%)
    • Cinema or theater (28%)
    • Supermarkets (24%)
    • Concerts or festivals (22%)
    • Gas stations (22%)
  • The communication methods used by the totally deaf people surveyed are:
    • Lip reading (83%)
    • ASL signs (64%)
    • Writing (65%)
    • Verbal (59%)
    • Creole signs (56%)
    • Interpreter (45%)
    • Non-formal signs (26%)
  • On the other hand, the communication methods most used by partially deaf people surveyed are verbal (87%), lip reading (59%) and written (43%).
  • 51% of the totally deaf people surveyed reported using one of the following headphone devices:
    • Behind the ear or behind the ear (64%)
    • CROS hearing aid — BI-CROS (14%)
    • In the ear — Intra shell (11%)
    • Cochlear implant (8%)
    • Open ear — miniature size (3%)
  • 58% of partially deaf people surveyed reported using one of the following headphone devices:
    • Behind the ear or behind the ear (53%)
    • CROS hearing aid — BI-CROS (26%)
    • In the channel — Intracanal (11%)
    • In the ear — Intra shell (5%)
    • Other (6%)
  • 10% of all respondents indicated that they are hearing people (who are not deaf or partially deaf) but who live with a deaf person.
  • 43% of the listeners surveyed, who live with a deaf person, have not taken sign language courses.
  • On the other hand, 42% of all respondents indicated that they are hearing people (who are not deaf or partially deaf) but who know a deaf person.
  • 25% of all respondents indicated that they are hearing people (who are not deaf or partially deaf) who do not live with a deaf person and who do not know a deaf person.
  • In general terms, the educators who participated in the focus groups agreed that there are not many materials adapted for deaf students, so sometimes the teachers themselves have to modify the materials.

In the same way, the educators who participated in the focus groups agreed that in general, parents and/or guardians are not given the necessary support at the time the child is diagnosed. Dr. Disdier explained that the final sample of the survey consisted of 739 adults, 18 years of age or older, living in Puerto Rico, and it was accessible for more than sixty (60) days. A total of 21 educators were part of several focus groups, in which in-depth conversations were held about the needs of deaf students. In this regard, Dr. Disdier argued that “The data collected by educators of deaf students alert us that, like deaf adults, deaf children and adolescents also face challenges and needs, and that these challenges and needs are different and require actions adapted to that demographic sector.”

For his part, Manuel Mangual, Evaluation Specialist, who managed the study, explained that there are still some survey questions that are being processed and whose data will eventually be added to the interactive report. Likewise, in the coming weeks, additional focus group interviews will be conducted, whose results will also be included in the report, expanding and strengthening it. “Working on this project, for the benefit of deaf and partially deaf people, has been a lot of learning, enthusiasm and pride. The study participants gave us the confidence to be part of one voice when it came to their needs. During the next phases, we will continue to produce information aimed at promoting a more inclusive society,” emphasized Mangual.

The Study of the Needs of the Deaf Community: Interactive Report, resides on the website of the Puerto Rico Institute of Statistics and can be accessed at any time by interested parties at the following e-mail address: Outcomes and Needs Deaf Community.

For technical questions about this report, you can send an email to: preguntas@estadisticas.pr.

To learn more about the Institute of Statistics, you can access the website: www.estadisticas.pr.gov. On social media through Facebook accounts (@statistics.pr), Twitter (@EstadisticasPR), Instagram (@institutodeestadisticas) and LinkedIn (Puerto Rico Institute of Statistics).

CP Deaf Community Registry

Press Release

Exhortation to the deaf community and their families to complete registration to strengthen the information available on this population in Puerto Rico

 San Juan, Puerto RicoMarch 18, 2026. The Puerto Rico Statistics Institute (Institute), in collaboration with the Deaf Community Liaison Office and several agencies of the Government of Puerto Rico, urged deaf people, people with partial hearing loss, deafblind people and their families to participate in an online registry that will allow the collection of key information about this population in Puerto Rico.

The initiative is developed in accordance with Executive Order OE-2026-002, issued by the governor of Puerto Rico, Jennifer A. González Colón, which instructs the Institute of Statistics, in collaboration with the Department of Health, the University of Puerto Rico, the Vocational Rehabilitation Administration, the Deaf Community Liaison Office and other entities, to carry out a formal effort to collect information about the deaf community in Puerto Rico and its characteristics, including the communication methods used.

As explained by the executive director of the Institute, Dr. Orville M. Disdier, community participation is essential for reliable information to guide public decision-making and the development of initiatives aimed at this population. “Having reliable information is essential to be able to develop public policies and services that respond to the real needs of the community. That's why we invite deaf people, those with hearing loss and their families to participate in this registry. Their participation will strengthen knowledge about this population and support informed decisions for the benefit of the deaf community in Puerto Rico,” said Disdier.

It takes three to five minutes to complete the registration. Participation is encouraged to:

  • Deaf people
  • People with partial (mild to moderately severe) hearing loss
  • Deafblind people
  • Families and caregivers who support people with these conditions

Interested persons can complete the registration at the following link: surveymonkey.com/r/deafspr

Information and guidance

Individuals or organizations interested in receiving guidance or collaborating in the dissemination of this information can contact:

Deaf Community Liaison Office (OECS)
Phone: 787-725-2333 ext. 203
VRS: 787-773-1487
Email: oecs@dpi.pr.gov
Website: www.dpi.pr.gov

Puerto Rico Institute of Statistics
Telephone: 787-819-0730
Email: preguntas@estadisticas.pr

U.S. Census Bureau releases the most recent data on business activity using the 2013 County Business Patterns

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