To establish the Public Policy of the Government of Puerto Rico regarding Albinism and Hermansky‐Pudlak Syndrome, providing that direct access will be established to providers and medical specialists, as well as those medications, treatments, therapies and tests scientifically validated as effective and recommended to diagnose and treat the condition, without the need for referral, authorization or pre-authorization of the plan; order the Department of Health to create and exercise public policy, establishing a Registry of people suffering from disease for the purpose of keeping official statistics and creating a profile of cases that exist in Puerto Rico; and for other related purposes.

Date: May 25, 2011

Budget request for fiscal year 2011-12 before the Puerto Rico House of Representatives.

Date: October 22, 2014

To establish the “Puerto Rico Registration and Vital Statistics Act”, for the purpose of establishing the Puerto Rico Vital Statistics Registry Office (OREV), which shall exercise full fiscal and administrative autonomy; establish its functions and responsibilities; provide for a minimum amount of local records; create the management position of State Registrar; establish minimum requirements, the term, functions and powers of the position; establish transitional clauses for the transfer and transfer of human capital, movable and immovable property; implement a security method to the Vital Statistics System for purposes of public health, national security, among others; establish procedures for handling legal documents provided for by law, such as certificates and reports of vital events; impose controls to prepare, maintain and disclose the content of vital records and reports in their custody; repeal Act No. 24 of April 22, 1931, according to...