To add a new Article 20 of Act No. 209-2003, as amended, known as the Puerto Rico Institute of Statistics Act, for the purpose of providing by law the Academies and Workshops Program of the Institute of Statistics of Puerto Rico; establishing a certification system for continuing education as a requirement for occupying and remaining in a position or position, or offering external consulting or advice, with the responsibility of collaborating or collecting data or developing statistical products in the statistical units of the agencies governmental; correct a technical error in paragraph (i) of Article 5 of the said Act; renumber subsequent articles; and for other purposes.

Date: April 17, 2015

To add new paragraphs (o) and (p), and to redesignate the current paragraphs (o), (p), (q) and (r), such as paragraphs (q), (r), (s) and (t), respectively, of Article 5 of Law 209? 2003, as amended, known as the “Puerto Rico Institute of Statistics Act”, for the purpose of giving the said governmental entity the responsibility to promote the full inclusion of Puerto Rico in all international statistical programs, through bilateral and multilateral cooperation agreements in statistical matters with other organizations, countries or regions, in order to have measurement mechanisms to compare the development of the Island with the rest of the countries of the world; and to temper the provisions of this Act with the provisions of paragraph (j) of Article 4 of Act No. 77 of June 19, 1979, as amended, known as the “Puerto Rico Administration of Federal Affairs Act”.

To establish the Public Policy of the Government of Puerto Rico regarding Albinism and Hermansky‐Pudlak Syndrome, providing that direct access will be established to providers and medical specialists, as well as those medications, treatments, therapies and tests scientifically validated as effective and recommended to diagnose and treat the condition, without the need for referral, authorization or pre-authorization of the plan; order the Department of Health to create and exercise public policy, establishing a Registry of people suffering from disease for the purpose of keeping official statistics and creating a profile of cases that exist in Puerto Rico; and for other related purposes.