They reveal an increasing trend in the incidence of Type 1 Diabetes in the

pediatric population in Puerto Rico

At the launch of the first Pediatric Type 1 Diabetes Platform in Puerto Rico

The incidence rate of Type 1 Diabetes in the pediatric population (new cases per 100,000 people between 0 and 18 years of age) shows a tendency to increase over the years, with 2009 being the year with the lowest rate (20.5), and 2021 the year with the highest rate (38.4). Although there are variations, on average, the incidence rate shows an increasing trend of 1% per year. In the most recent available year, 2022, the incidence rate was 34.2 new cases per 100,000 people between 0 and 18 years old. These data were revealed during the presentation of the first Pediatric Type 1 Diabetes Platform in Puerto Rico, developed by the Statistics Institute of Puerto Rico in partnership with the Pediatric Diabetes Foundation. This platform provides essential statistical data for understanding and addressing Type 1 Diabetes in Puerto Rico and is available at: https://estadisticas.pr/en/diabetes-tipo-1.

“These data are essential to be able to establish public policies for management, allocation of funds and resources, for researchers, doctors and for the families of patients living with diabetes. We needed an entity such as the Puerto Rico Statistics Institute with the expertise and willingness to help us with the statistical process, which resulted in an important alliance of will between the Foundation and the Institute. Today we can present the result of the collaboration between the Foundation and the Institute,” said Bernardo Maldonado, president of the Board of Directors of the Puerto Rico Pediatric Diabetes Foundation.

According to the executive director of the Institute of Statistics, Dr. Orville M. Disdier, this platform represents an essential advance in the understanding and management of Type 1 Diabetes in the pediatric population. “These findings, presented for the first time on an interactive platform, provide a detailed view of the situation of Type 1 Pediatric Diabetes in Puerto Rico, which is essential for guiding public health policies and resource allocation,” said Dr. Disdier.

The findings detailed on the platform reveal significant data for the period from 2009 to 2022. Among these, the following stand out:

• Between 2009 and 2022, a total of 2,850 people between 0 and 18 years of age were diagnosed with Type 1 Diabetes for the first time. On average, 204 cases of Type 1 Diabetes are diagnosed annually in people 18 years of age or younger.
• Most of the cases (67%) diagnosed with Type 1 Diabetes for the first time were between 5 and 14 years old. The average age of these cases was approximately 10 years.
• Overall, 53% of the cases were male and the remaining 47% were female.

In addition, Mariana Benítez Hilera, executive director of the Pediatric Diabetes Foundation, emphasized the Foundation's work in collecting unique data since 2008. This is thanks to a collaborative alliance with the hospitals where these patients are diagnosed and pediatric endocrinologists. “Once a child is diagnosed with diabetes, the first help they receive at the hospital is from our Foundation, which in turn helps us to have contact with their family right from the start and help them throughout the education process,” said Benítez Hilera.

Dr. Marina Ruiz, a pediatric endocrinologist, emphasized that Type 1 Diabetes is the type of diabetes that most affects the pediatric population. “It's an autoimmune condition that has no cure and can't be prevented. The condition requires a multidisciplinary team, such as the one found at the Pediatric Diabetes Foundation, to achieve successful management. This is the first time that statistics on diabetes in children aged 0 to 18 have been generated in Puerto Rico, which will help position our island on the world map with validated and reliable data. This will lead to the development of clinical studies in the near future to continue expanding our knowledge of the condition. In addition, it helps to carry the message to communities so that they have symptoms present and thus avoid acute and/or chronic complications.” said Ruiz.

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Statistics Institute steps up oversight of agencies and municipalities failing to appoint representatives to the Statistics Coordination Committee

39.7% of municipalities and 14.8% of executive branch agencies are currently non-compliant

The Puerto Rico Institute of Statistics (Institute) has intensified its oversight of agencies, public entities, and municipalities that have failed to fulfill their duty to appoint a representative to the Statistics Coordination Committee (CCE). As part of this effort, the Institute has published Special Report 2027-01, which identifies 16 executive branch agencies and entities, as well as 31 municipalities, that remained non-compliant as of August 31, 2026, despite requests and follow-ups made since January. These entities must complete their appointments immediately or face further findings, potential administrative fines, and other legal actions.

Under the Institute’s organic law, the Statistics Coordination Committee serves as the government’s advisory, coordinating, and participatory body for Puerto Rico’s Statistical Production Service. This body is responsible for ensuring the flow and continuity of statistical data and information, resolving issues regarding access to such data, and proposing solutions to problems related to the operation of statistical units. Furthermore, the Statistics Coordination Committee Regulations stipulate that, upon request by the Institute’s Executive Directorate, the head of each government entity must fulfill the duty of appointing the CCE member who will represent that entity on the Committee.

Special Report 2027-01 shows that 85.2% of executive branch agencies and public entities are in compliance. Conversely, the compliance rate for municipalities is lower, at 60.3%. Meanwhile, 14.8% of executive branch agencies and public entities are non-compliant, as are 39.7% of municipalities.

“Compliance with CCE appointments is an essential requirement, as it ensures that Puerto Rico has access to complete, reliable, and universally accessible statistics. For this reason, since the beginning of 2026, the Institute has conducted an extraordinary campaign to promote and monitor compliance. Special Report 2027-01 on CCE appointments reflects a considerable increase in designations, as previously less than 50% of agencies had appointments and very few municipalities had designated representatives. Despite this progress, the report also shows that there are still agencies in non-compliance, and, in particular, many municipalities that have yet to meet this requirement,” stated Dr. Orville M. Disdier, Executive Director of the Institute of Statistics.

Details regarding which entities and municipalities are non-compliant (having failed to meet the appointment requirement) can be found in Section 3 of Special Report 2027-01. Additionally, Section 2 lists the executive branch entities and municipalities that are in compliance (having met the appointment requirement).  

Agencies and municipalities that have already fulfilled their CCE appointment requirements do not need to take any further action at this time. However, those that are non-compliant must immediately complete and submit the appointment form (FormularioDesignaciónCCE-31-10-2025) to Dr. Idania Rodríguez Ayuso, the Institute’s Deputy Executive Director (idania.rodriguez@estadisticas.pr), with a copy to Jacobo Orenstein Cardona, the Institute’s Executive Assistant (jacobo.orenstein@estadisticas.pr).

“We urge all executive branch agencies and entities, as well as all municipalities that remain non-compliant, to take immediate action to avoid further findings and potential fines,” added Disdier.

You can access the full report at: Special report on the compliance of agencies and municipalities with appointments to the Statistics Coordination Committee - 2027-01.

Statistics Institute launches new version of its Internet portal