Quality process begins to improve Puerto Rico's statistics

They reveal an increasing trend in the incidence of Type 1 Diabetes in the

pediatric population in Puerto Rico

At the launch of the first Pediatric Type 1 Diabetes Platform in Puerto Rico

The incidence rate of Type 1 Diabetes in the pediatric population (new cases per 100,000 people between 0 and 18 years of age) shows a tendency to increase over the years, with 2009 being the year with the lowest rate (20.5), and 2021 the year with the highest rate (38.4). Although there are variations, on average, the incidence rate shows an increasing trend of 1% per year. In the most recent available year, 2022, the incidence rate was 34.2 new cases per 100,000 people between 0 and 18 years old. These data were revealed during the presentation of the first Pediatric Type 1 Diabetes Platform in Puerto Rico, developed by the Statistics Institute of Puerto Rico in partnership with the Pediatric Diabetes Foundation. This platform provides essential statistical data for understanding and addressing Type 1 Diabetes in Puerto Rico and is available at: https://estadisticas.pr/en/diabetes-tipo-1.

“These data are essential to be able to establish public policies for management, allocation of funds and resources, for researchers, doctors and for the families of patients living with diabetes. We needed an entity such as the Puerto Rico Statistics Institute with the expertise and willingness to help us with the statistical process, which resulted in an important alliance of will between the Foundation and the Institute. Today we can present the result of the collaboration between the Foundation and the Institute,” said Bernardo Maldonado, president of the Board of Directors of the Puerto Rico Pediatric Diabetes Foundation.

According to the executive director of the Institute of Statistics, Dr. Orville M. Disdier, this platform represents an essential advance in the understanding and management of Type 1 Diabetes in the pediatric population. “These findings, presented for the first time on an interactive platform, provide a detailed view of the situation of Type 1 Pediatric Diabetes in Puerto Rico, which is essential for guiding public health policies and resource allocation,” said Dr. Disdier.

The findings detailed on the platform reveal significant data for the period from 2009 to 2022. Among these, the following stand out:

• Between 2009 and 2022, a total of 2,850 people between 0 and 18 years of age were diagnosed with Type 1 Diabetes for the first time. On average, 204 cases of Type 1 Diabetes are diagnosed annually in people 18 years of age or younger.
• Most of the cases (67%) diagnosed with Type 1 Diabetes for the first time were between 5 and 14 years old. The average age of these cases was approximately 10 years.
• Overall, 53% of the cases were male and the remaining 47% were female.

In addition, Mariana Benítez Hilera, executive director of the Pediatric Diabetes Foundation, emphasized the Foundation's work in collecting unique data since 2008. This is thanks to a collaborative alliance with the hospitals where these patients are diagnosed and pediatric endocrinologists. “Once a child is diagnosed with diabetes, the first help they receive at the hospital is from our Foundation, which in turn helps us to have contact with their family right from the start and help them throughout the education process,” said Benítez Hilera.

Dr. Marina Ruiz, a pediatric endocrinologist, emphasized that Type 1 Diabetes is the type of diabetes that most affects the pediatric population. “It's an autoimmune condition that has no cure and can't be prevented. The condition requires a multidisciplinary team, such as the one found at the Pediatric Diabetes Foundation, to achieve successful management. This is the first time that statistics on diabetes in children aged 0 to 18 have been generated in Puerto Rico, which will help position our island on the world map with validated and reliable data. This will lead to the development of clinical studies in the near future to continue expanding our knowledge of the condition. In addition, it helps to carry the message to communities so that they have symptoms present and thus avoid acute and/or chronic complications.” said Ruiz.

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PRESS RELEASE

Puerto Rico Statistics Institute launches digital platform that will help monitor the progress of vaccination against COVID-19 in Puerto Rico

The Puerto Rico Statistics Institute (Institute) made available today the COVID-19 Vaccination Indicator Platform, a digital tool that will help monitor vaccination progress in Puerto Rico, said its executive director, Dr. Orville M. Disdier. This mechanism will include indicators generated by the entity based on the quantity of vaccines administered and data provided by the Puerto Rico Department of Health, which meet the Institute's minimum quality criteria.

The platform presents, through tables, graphs and maps, the number of people vaccinated in Puerto Rico according to the doses administered; the demographic characteristics in terms of sex and age of the people vaccinated according to the dose; the age and sex distribution of the people vaccinated according to the dose; the people aged 16 and over vaccinated according to the dose per 10,000 inhabitants, as well as the 10 municipalities with the highest and lowest vaccination rates per 10,000 inhabitants.

“The purpose of this platform is to use recorded data on the vaccination process in Puerto Rico to generate some statistics and indicators. These indicators, although not intended to serve as a method of prediction or projection, will certainly help to know the progress of vaccination in Puerto Rico and the characteristics of those vaccinated, which will be an excellent source of information for all those interested in this topic,” said Disdier.

The platform is available through the link: COVID-19 Vaccination Indicator Platform. The content, as reported, will be updated weekly according to data availability.

The Puerto Rico Statistics Institute is an autonomous governmental entity tasked with coordinating the government's statistical production service to ensure that the data collection and statistics systems, on which public policies are based, are complete, reliable, and accessible quickly and universally.

For more information you can visit the website: https://estadisticas.pr.gov/. In addition, you can follow the Institute on social networks, through Facebook (@estadisticas .pr), Twitter (@EstadisticasPR) and LinkedIn (Institute of Statistics of Puerto Rico) accounts.

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Contacts:

Idia M. Martinez, R-28

787-603-3200

Lourdes Burgos, R-27

787-562-2932

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