Puerto Rico ranks 38th in the Global Open Data Index

AMERICAN STATISTICAL ASSOCIATION REQUIRES ROSSELLÓ NOT TO DISMANTLE PUERTO RICO'S STATISTICS INSTITUTE

The executive director attacked the measure and invited the Government to take statistics seriously at this time of fiscal crisis

San Juan, PR, January 25, 2018 — The American Statistical Association, known as the American Statistical Association (ASA) today released a cyber petition entitled Clear Accounts: Let's Preserve the Autonomy and Impartiality of the Puerto Rico Statistics Institute in which he calls on both Governor Ricardo Rosselló and members of the Legislature to desist from transferring the functions of the Puerto Rico Statistics Institute (IEPR) to the Puerto Rico Department of Economic Development and Trade in order to eventually outsource all the statistical functions of the Government of Puerto Rico.

The ASA request makes specific reference to Reorganization Plan No. 1 And to Senate Bill 809, which was published yesterday and signed by five scientists from prestigious entities such as Harvard T.H. Chan School of Public Health and Yale University.

In addition, he emphasizes that this measure “would dismantle the IEPR and its autonomy, and would jeopardize the transparent and impartial statistical analyses that are critical to the functioning of Puerto Rico and to decision-making in all sectors of society, public and private.”

To this end, the executive director of the Puerto Rico Institute of Statistics, Dr. Mario Marazzi-Santiago, insisted that everywhere in the world there is a recognition of the need for official statistics to be prepared by independent governmental entities so that they can carry out their functions in a manner totally disconnected from political influences.

The Government of Puerto Rico has a long history of producing, disseminating and presenting rigged, outdated, misinterpreted, and incomplete statistics, and then access to sources of information is not provided so that the information can be verified, either by the citizen or by a congressman. The reality is that statistics are a serious issue and it is time for our Government to take them seriously, particularly if it wants to address its own fiscal problem.

Marazzi Santiago assured that there is no way that the proposed reorganization of the Institute of Statistics, as a program within the Department of Economic Development and Trade or outsourced by it, will solve the serious problem of reliability and credibility that the Government of Puerto Rico has with its statistics.

“We appreciate the efforts of the American Statistical Association (ASA) to create a vehicle that allows data users to express themselves publicly about the proposed reorganization,” said Dr. Marazzi-Santiago.

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The Puerto Rico Statistics Institute is an autonomous governmental entity responsible for coordinating the Government's statistical production service to ensure that the data collection and statistics systems, on which public policies are based, are complete, reliable, and have quick and universal access. The Institute has in its inventory, accessible through www.estadisticas.pr, more than 300 statistical products. In addition, it is a guardian and provides access to over 100 data sets or “data sets” through www.data.pr.gov and to over 40 tables and more than 6 thousand indicators through: www.indicadores.pr.

For more information you can visit our website: www.estadisticas.pr. In addition, you can follow us on social networks through Facebook (estadisticas.pr), Twitter (@EstadisticasPR) and LinkedIn (Institute of Statistics of Puerto Rico) accounts.

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They reveal an increasing trend in the incidence of Type 1 Diabetes in the

pediatric population in Puerto Rico

At the launch of the first Pediatric Type 1 Diabetes Platform in Puerto Rico

The incidence rate of Type 1 Diabetes in the pediatric population (new cases per 100,000 people between 0 and 18 years of age) shows a tendency to increase over the years, with 2009 being the year with the lowest rate (20.5), and 2021 the year with the highest rate (38.4). Although there are variations, on average, the incidence rate shows an increasing trend of 1% per year. In the most recent available year, 2022, the incidence rate was 34.2 new cases per 100,000 people between 0 and 18 years old. These data were revealed during the presentation of the first Pediatric Type 1 Diabetes Platform in Puerto Rico, developed by the Statistics Institute of Puerto Rico in partnership with the Pediatric Diabetes Foundation. This platform provides essential statistical data for understanding and addressing Type 1 Diabetes in Puerto Rico and is available at: https://estadisticas.pr/en/diabetes-tipo-1.

“These data are essential to be able to establish public policies for management, allocation of funds and resources, for researchers, doctors and for the families of patients living with diabetes. We needed an entity such as the Puerto Rico Statistics Institute with the expertise and willingness to help us with the statistical process, which resulted in an important alliance of will between the Foundation and the Institute. Today we can present the result of the collaboration between the Foundation and the Institute,” said Bernardo Maldonado, president of the Board of Directors of the Puerto Rico Pediatric Diabetes Foundation.

According to the executive director of the Institute of Statistics, Dr. Orville M. Disdier, this platform represents an essential advance in the understanding and management of Type 1 Diabetes in the pediatric population. “These findings, presented for the first time on an interactive platform, provide a detailed view of the situation of Type 1 Pediatric Diabetes in Puerto Rico, which is essential for guiding public health policies and resource allocation,” said Dr. Disdier.

The findings detailed on the platform reveal significant data for the period from 2009 to 2022. Among these, the following stand out:

• Between 2009 and 2022, a total of 2,850 people between 0 and 18 years of age were diagnosed with Type 1 Diabetes for the first time. On average, 204 cases of Type 1 Diabetes are diagnosed annually in people 18 years of age or younger.
• Most of the cases (67%) diagnosed with Type 1 Diabetes for the first time were between 5 and 14 years old. The average age of these cases was approximately 10 years.
• Overall, 53% of the cases were male and the remaining 47% were female.

In addition, Mariana Benítez Hilera, executive director of the Pediatric Diabetes Foundation, emphasized the Foundation's work in collecting unique data since 2008. This is thanks to a collaborative alliance with the hospitals where these patients are diagnosed and pediatric endocrinologists. “Once a child is diagnosed with diabetes, the first help they receive at the hospital is from our Foundation, which in turn helps us to have contact with their family right from the start and help them throughout the education process,” said Benítez Hilera.

Dr. Marina Ruiz, a pediatric endocrinologist, emphasized that Type 1 Diabetes is the type of diabetes that most affects the pediatric population. “It's an autoimmune condition that has no cure and can't be prevented. The condition requires a multidisciplinary team, such as the one found at the Pediatric Diabetes Foundation, to achieve successful management. This is the first time that statistics on diabetes in children aged 0 to 18 have been generated in Puerto Rico, which will help position our island on the world map with validated and reliable data. This will lead to the development of clinical studies in the near future to continue expanding our knowledge of the condition. In addition, it helps to carry the message to communities so that they have symptoms present and thus avoid acute and/or chronic complications.” said Ruiz.

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