They reveal an increasing trend in the incidence of Type 1 Diabetes in the

pediatric population in Puerto Rico

At the launch of the first Pediatric Type 1 Diabetes Platform in Puerto Rico

The incidence rate of Type 1 Diabetes in the pediatric population (new cases per 100,000 people between 0 and 18 years of age) shows a tendency to increase over the years, with 2009 being the year with the lowest rate (20.5), and 2021 the year with the highest rate (38.4). Although there are variations, on average, the incidence rate shows an increasing trend of 1% per year. In the most recent available year, 2022, the incidence rate was 34.2 new cases per 100,000 people between 0 and 18 years old. These data were revealed during the presentation of the first Pediatric Type 1 Diabetes Platform in Puerto Rico, developed by the Statistics Institute of Puerto Rico in partnership with the Pediatric Diabetes Foundation. This platform provides essential statistical data for understanding and addressing Type 1 Diabetes in Puerto Rico and is available at: https://estadisticas.pr/en/diabetes-tipo-1.

“These data are essential to be able to establish public policies for management, allocation of funds and resources, for researchers, doctors and for the families of patients living with diabetes. We needed an entity such as the Puerto Rico Statistics Institute with the expertise and willingness to help us with the statistical process, which resulted in an important alliance of will between the Foundation and the Institute. Today we can present the result of the collaboration between the Foundation and the Institute,” said Bernardo Maldonado, president of the Board of Directors of the Puerto Rico Pediatric Diabetes Foundation.

According to the executive director of the Institute of Statistics, Dr. Orville M. Disdier, this platform represents an essential advance in the understanding and management of Type 1 Diabetes in the pediatric population. “These findings, presented for the first time on an interactive platform, provide a detailed view of the situation of Type 1 Pediatric Diabetes in Puerto Rico, which is essential for guiding public health policies and resource allocation,” said Dr. Disdier.

The findings detailed on the platform reveal significant data for the period from 2009 to 2022. Among these, the following stand out:

• Between 2009 and 2022, a total of 2,850 people between 0 and 18 years of age were diagnosed with Type 1 Diabetes for the first time. On average, 204 cases of Type 1 Diabetes are diagnosed annually in people 18 years of age or younger.
• Most of the cases (67%) diagnosed with Type 1 Diabetes for the first time were between 5 and 14 years old. The average age of these cases was approximately 10 years.
• Overall, 53% of the cases were male and the remaining 47% were female.

In addition, Mariana Benítez Hilera, executive director of the Pediatric Diabetes Foundation, emphasized the Foundation's work in collecting unique data since 2008. This is thanks to a collaborative alliance with the hospitals where these patients are diagnosed and pediatric endocrinologists. “Once a child is diagnosed with diabetes, the first help they receive at the hospital is from our Foundation, which in turn helps us to have contact with their family right from the start and help them throughout the education process,” said Benítez Hilera.

Dr. Marina Ruiz, a pediatric endocrinologist, emphasized that Type 1 Diabetes is the type of diabetes that most affects the pediatric population. “It's an autoimmune condition that has no cure and can't be prevented. The condition requires a multidisciplinary team, such as the one found at the Pediatric Diabetes Foundation, to achieve successful management. This is the first time that statistics on diabetes in children aged 0 to 18 have been generated in Puerto Rico, which will help position our island on the world map with validated and reliable data. This will lead to the development of clinical studies in the near future to continue expanding our knowledge of the condition. In addition, it helps to carry the message to communities so that they have symptoms present and thus avoid acute and/or chronic complications.” said Ruiz.

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PRESS RELEASE

Office of the President

Vital for the country that mayors mobilize to obtain

Responses to the 2020 Census

President of the Board of Directors of the Institute of Statistics made an urgent appeal to municipal officials given the low participation of only 25% of the response

The president of the Board of Directors of the Puerto Rico Institute of Statistics, economist and university professor Nicolás Muñoz-Muñoz, urged all mayors to mobilize the resources of municipal agencies to visit street by street, combing all communities to alert families to the importance of filling out the 2020 Population Census form. I am taking all preventive and protective measures as far as COVID-19 is concerned.

As of July 13, only 25% of families had answered the Census. This, according to Muñoz, represents half of those who had answered the Census in 2010. In mid-July, the level of response in municipalities ranged from 14 to 31 percent. “It is vital for municipalities and their inhabitants that the federal funds that arrive are not reduced by 25% or more. Without downplaying the exercise of the democratic right to vote, designating resources to help citizens complete the Census should be considered as meritorious as the efforts being made for the primary and electoral process,” Muñoz said.

“If mobilization were not promoted to encouraging communities to dedicate 15 minutes to answering the form, we would add another disaster to the chain of events that have occurred in the country since the earthquake in January to the present. In this case, a disaster whose consequences would last 10 years,” said Muñoz.

The economist explained that, if 25% of the population does not answer, Puerto Rico could result in a population of less than 3 million and could receive 25% less federal funding, equivalent to $5 billion annually or $50 billion over 10 years, if we consider an average current allocation of $20 billion annually. This is without considering additional special allocations in the case of natural disasters.

It was also reported that more than 300 federal programs base the distribution of funds on population data. These programs include federal funding for road construction, agriculture, rural development, housing, urban development, solid waste management, telecommunications infrastructure, drinking water, protection of coastal resources, assistance for paying household rent, education, justice, nutrition assistance programs, school breakfasts, child care, workforce development under the WIOA Act (among other laws), assistance for the elderly and health, including Medicaid, and other programs.

“The economic situation of municipalities will worsen if access to federal funds allocated by Congress is reduced. Every Puerto Rican who can read and write can fill out the Census form. It can be filled out “online” or on paper. Each neighbor can help another neighbor who can't read and write or how to fill it out, particularly older adults. It's everyone's job, but mayors, who are the officials closest to the needs of citizens, must exercise their leadership in this vital priority for Puerto Rico,” Muñoz concluded.

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Press Contact:

Idia M. Martínez

787-603-3200

imartinez@upfrontpr.net

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