The Puerto Rico Statistics Institute joins 16 days of activism against gender-based violence, which is an annual international campaign that begins on November 25, the International Day for the Elimination of Violence against Women, and continues until December 10, Human Rights Day.

As part of the PARE Committee, the Institute invites them to access the Committee's educational materials on this topic.

Visit: https://parelaviolencia.pr.gov/

They reveal an increasing trend in the incidence of Type 1 Diabetes in the

pediatric population in Puerto Rico

At the launch of the first Pediatric Type 1 Diabetes Platform in Puerto Rico

The incidence rate of Type 1 Diabetes in the pediatric population (new cases per 100,000 people between 0 and 18 years of age) shows a tendency to increase over the years, with 2009 being the year with the lowest rate (20.5), and 2021 the year with the highest rate (38.4). Although there are variations, on average, the incidence rate shows an increasing trend of 1% per year. In the most recent available year, 2022, the incidence rate was 34.2 new cases per 100,000 people between 0 and 18 years old. These data were revealed during the presentation of the first Pediatric Type 1 Diabetes Platform in Puerto Rico, developed by the Statistics Institute of Puerto Rico in partnership with the Pediatric Diabetes Foundation. This platform provides essential statistical data for understanding and addressing Type 1 Diabetes in Puerto Rico and is available at: https://estadisticas.pr/en/diabetes-tipo-1.

“These data are essential to be able to establish public policies for management, allocation of funds and resources, for researchers, doctors and for the families of patients living with diabetes. We needed an entity such as the Puerto Rico Statistics Institute with the expertise and willingness to help us with the statistical process, which resulted in an important alliance of will between the Foundation and the Institute. Today we can present the result of the collaboration between the Foundation and the Institute,” said Bernardo Maldonado, president of the Board of Directors of the Puerto Rico Pediatric Diabetes Foundation.

According to the executive director of the Institute of Statistics, Dr. Orville M. Disdier, this platform represents an essential advance in the understanding and management of Type 1 Diabetes in the pediatric population. “These findings, presented for the first time on an interactive platform, provide a detailed view of the situation of Type 1 Pediatric Diabetes in Puerto Rico, which is essential for guiding public health policies and resource allocation,” said Dr. Disdier.

The findings detailed on the platform reveal significant data for the period from 2009 to 2022. Among these, the following stand out:

• Between 2009 and 2022, a total of 2,850 people between 0 and 18 years of age were diagnosed with Type 1 Diabetes for the first time. On average, 204 cases of Type 1 Diabetes are diagnosed annually in people 18 years of age or younger.
• Most of the cases (67%) diagnosed with Type 1 Diabetes for the first time were between 5 and 14 years old. The average age of these cases was approximately 10 years.
• Overall, 53% of the cases were male and the remaining 47% were female.

In addition, Mariana Benítez Hilera, executive director of the Pediatric Diabetes Foundation, emphasized the Foundation's work in collecting unique data since 2008. This is thanks to a collaborative alliance with the hospitals where these patients are diagnosed and pediatric endocrinologists. “Once a child is diagnosed with diabetes, the first help they receive at the hospital is from our Foundation, which in turn helps us to have contact with their family right from the start and help them throughout the education process,” said Benítez Hilera.

Dr. Marina Ruiz, a pediatric endocrinologist, emphasized that Type 1 Diabetes is the type of diabetes that most affects the pediatric population. “It's an autoimmune condition that has no cure and can't be prevented. The condition requires a multidisciplinary team, such as the one found at the Pediatric Diabetes Foundation, to achieve successful management. This is the first time that statistics on diabetes in children aged 0 to 18 have been generated in Puerto Rico, which will help position our island on the world map with validated and reliable data. This will lead to the development of clinical studies in the near future to continue expanding our knowledge of the condition. In addition, it helps to carry the message to communities so that they have symptoms present and thus avoid acute and/or chronic complications.” said Ruiz.

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Puerto Rico Statistics Institute participates in the hearing of the Natural Resources Committee of the United States House of Representatives

Washington, DC — June 21, 2024. The Puerto Rico Statistics Institute (Institute) participated in the hearing of the Subcommittee on Indigenous and Insular Affairs of the Committee on Natural Resources of the United States House of Representatives. During the hearing, entitled Examining the findings of the Government Accountability Office (GAO) to address data breaches and improve data collection in the territories, the importance of having high-quality statistics for effective democratic governance and the appropriate allocation of government resources was emphasized.

The representative of the Institute at these hearings, Mr. Jacobo Orenstein Cardona, said that the Institute supports the recent GAO report, which recommends “that the Director of the Office of Management and Budget (OMB) ensure that your Chief Statistician develops a coordinated approach at the government level so that federal statistical agencies, in consultation with U.S. territories and other stakeholders, examine the costs, benefits and feasibility of including territories in statistical products and, as appropriate, identify ways to address any data gaps.”

During his presentation, Orenstein-Cardona, who is also the Institute's executive assistant, emphasized that “high-quality statistics are fundamental to a functional democracy because they provide a factual basis for making informed decisions. In a democratic society, the ability of citizens to make educated decisions about their governance and policies is paramount.”

Among other issues, Orenstein-Cardona emphasized that “high-quality statistics help in the allocation of government resources, since they indicate where more investment is needed, whether in education, health, infrastructure or other areas. They also promote a culture of responsibility, where public officials are responsible for their decisions and the results obtained.”

Orenstein-Cardona concluded his presentation by mentioning that, “through collaboration with federal and local governments, the Institute can serve as an intermediary and contribute significantly to the inclusion of Puerto Rico in federal statistical products. This will allow for comparability with other jurisdictions in the United States and will improve the reliability of statistics for the benefit of the entire population of Puerto Rico.”

The Puerto Rico Statistics Institute is an autonomous governmental entity responsible for coordinating the Government's statistical production service to ensure that the data collection and statistics systems, on which public policies are based, are complete, reliable, and have quick and universal access.

For more information you can visit the website: www.estadisticas.pr or write to preguntas@estadisticas.pr. They can also follow social networks through Facebook (@estadisticas .pr), X (@EstadisticasPR), LinkedIn (Institute of Statistics of Puerto Rico) and Instagram (@institutodeestadisticas) accounts.

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