To amend Article 6 of Law 209-2003, as amended, to provide that the Institute of Statistics of Puerto Rico may request, accept and receive donations, and set and collect reasonable fees for obtaining information and studies that originate, analyze or disclose by the Institute; that the sums collected by this concept will be entered into a special account called “Special Fund of the Institute of Statistics of Puerto Rico”, which may be used to defray the operating and operating expenses of the Institute and the statistical activities that the Institute determines; to amend Article 8 of the above-mentioned Act No. 209-2003, to establish that the Board of Directors of the Institute has the power to approve the acquisition of equipment, materials and services whose value exceeds one hundred thousand ($100,000) dollars; and to amend Article 11 of the aforementioned Law 209-2003...

To establish the Public Policy of the Government of Puerto Rico regarding Albinism and Hermansky‐Pudlak Syndrome, providing that direct access will be established to providers and medical specialists, as well as those medications, treatments, therapies and tests scientifically validated as effective and recommended to diagnose and treat the condition, without the need for referral, authorization or pre-authorization of the plan; order the Department of Health to create and exercise public policy, establishing a Registry of people suffering from disease for the purpose of keeping official statistics and creating a profile of cases that exist in Puerto Rico; and for other related purposes.

Date: May 26, 2009

To amend subparagraphs (f) and (m) of Article 5 of Act No. 209 of August 28, 2003, as amended, known as the “Puerto Rico Institute of Statistics Act”, to provide that the Inventory of Statistics of the Commonwealth of Puerto Rico be submitted to the Legislative Assembly of Puerto Rico on a quarterly basis; and to keep up to date a reliable system of statistics related to school dropout.